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Category Archives: ALS Updates
ALS Caregiver’s Blolg: 2013 Medicare Rx Drug Benefit Enrollment Guideline Shared by the ALS Association
The ALS Association encourages people with ALS who are enrolled in Medicare to take advantage of the annual Open Enrollment period to make sure they have the best coverage available to meet their prescription drug and health care needs in … Continue reading
Posted in ALS Updates, Medication
Tagged ALS Association, Medicare, Medicare open enrollment, PALS, prescriptin drugs, Rx Benefits
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ALS Caregiver’s Blog: ALS Researchers Find Genetic Region Influencing Age at Which People Develop Lou Gehrig’s Disease
This information was shared by the ALS Association. This is another great reason why it is important to connect with the ALS Association because they keep you abreast with the latest research, results and resources. FOR IMMEDIATE RELEASE: ALS Researchers … Continue reading
ALS Caregiver’s Blog – Day 3 ALS Awareness Month
Today is the third day of ALS Awareness Month. I encourage you to share the calendar of events for this month with your family and friends through word of mouth and social media. The surprise occurs when you become more … Continue reading
Posted in ALS Awareness Month, ALS Updates, Events
Tagged ALS, ALS Awareness Month, May 3rd
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New ALS Treatment Approved by the FDA
Checking out my Facebook wall this morning I noticed a post by Sarah Stein, ALS Association patient coordinator for the Richmond, VA area. Her post stopped me in my tracks because it was about the new ALS treatment approved by … Continue reading
Posted in ALS Updates
Tagged ALS, ALS Association, MCV, NeuRx Diaphragm Pacing System (DPS), respiratory failure, Richmond, Sarah Stein, trachea, VA, ventilator
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2012 ALS Advocacy Conference
Advocacy Day Registration Opens Monday February 6, 2012 at 11 am Eastern The ALS Association is pleased to announce that online registration for the 2012 National ALS Advocacy Day and Public Policy Conference will open at 11:00 am (EST) on … Continue reading
Posted in ALS Updates, Events
Tagged Advocacy Conference, ALS Advocacy Day, ALS Association, ALS Cure, ALS treatment, CALS, PALS, Public Policy Conference, Washington DC
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$6.4 Million in Funding Approved by Congress for ALS
This is an advocacy update provided by the ALS Association Congress Approves ALS Funding! Great news! Congress approved legislation that provides an additional $6.4 million for the ALS Research Program (ALSRP) at the Department of Defense and almost $6 million … Continue reading
Veterans Awareness Campaign Launches
The ALS Association is launching a national campaign to raise public awareness of our military heroes fighting ALS and those who have been lost to the disease. The campaign will continue through Veterans Day on November 11 and will deliver … Continue reading
Genetic Abnormalities Linked to ALS Discovered!
Thanks to your support of events such as the Walk to Defeat ALS®, The ALS Association has funded two independent studies that have found a genetic abnormality that, according to researchers, is the most common cause of amyotrophic lateral sclerosis … Continue reading
$1.1 Million Awarded for Respite Care
The U.S. Administration on Aging has awarded $1.1 million in grant funding to expand the availability of respite care for people with ALS and other disabling conditions and diseases. The grants are part of the Lifespan Respite Care program, which … Continue reading
Alscaregiver's Blog 