2012 ALS Advocacy Conference

Advocacy Day Registration Opens Monday February 6, 2012 at 11 am Eastern

The ALS Association is pleased to announce that online registration for the 2012 National ALS Advocacy Day and Public Policy Conference will open at 11:00 am (EST) on Monday February 6, and will be available on our web site: http://www.alsa.org/advocacy/advocacy-day/.   An electronic copy of the 2012 conference registration brochure is available on the site and can be found here.   The brochure includes a detailed schedule of events for this year’s conference, which takes place in Washington, DC May 13-15.   Hotel information and details on registration fees, including Sunday only fees, early bird registration deadlines and how to reserve an ADA accessible hotel room, also can be found in the brochure.   Please note that in order to request an ADA accessible hotel room, attendees must contact Mary Wisniewski, event planner for the conference, at adaroom@alsa-national.org or by phone at 202-746-0043.   ADA room reservations open at 11am EST on Monday, February 6.   As always, The ALS Association waives conference registration fees for all people with ALS and a caregiver traveling with them to Washington, DC.   The Advocacy Conference has played a major role in advancing the fight for a treatment and cure, including helping to secure $650 million in government funding for ALS research and vital Medicare benefits and benefits for military veterans and their survivors.  Equally important, the conference empowers people with ALS and their families with the ability to fight back in the war against ALS.   Click here to learn more about this year’s exciting conference.   We hope you will join us this May as we continue to create the roadmap that will lead to a treatment and cure for ALS.   If you have any questions about the 2012 conference, please contact us at adaroom@alsa-national.org or toll-free at 1-877-444-ALSA.   Together we are making a difference!

*This information was shared by the ALS Association.

About alscaregiver

Sherri was the primary caregiver for her mother who lived with ALS. Her mother was diagnosed with the dis-ease in October 2008 and passed away August 30, 2010. As an entrepreneur it allowed Sherri the flexibility and resources to care for her mother full-time. She is a career and marketing coach who works with people who are transitioning careers and/or starting a new business. By living while alive, Sherri's mother, Mrs. Jessie Barnes, still experienced a quality of life as her ALS progressed. The family of Jessie Barnes was honored to be the lead/chair family for the Walk to Defeat ALS in Richmond, VA on October 23, 2010. They walked in memory of Jessie Barnes. Sherri is still a strong advocate for ALS and as the wife of a 10 year NFL veteran she is striving to become a family advocate for other NFL families living with ALS. Sherri can be heard every Sunday 9-10 PM EST as a host on www.talk2mesportsradio.com. Her show is Real Talk With Coach Sherri and she discusses life after sports and careers in sports. You can call in to join the conversation at 646-716-5245 or listen online. Sherri does professional development workshops for small and large groups that consists of customized training that focuses on empowerment. For more information or to connect with Sherri go to info@coach-sherri.com.
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